Students in Montgomery County walked to raise some much needed funds for a family who has two kids diagnosed with a rare and fatal disease.
Not long ago, the Vivian family learned their son, Eli, had Metachromatic Leukodystrophy (MLD), a genetic disorder that affects the nerves and muscles, organs and behavior.
Shortly after getting the news about Eli, the family learned their four-year-old daughter, Ella, was diagnosed with the same disease.
The two kids are now in the fight of their young lives.
The family says there is one piece of hope. A hospital study in Milan, Italy is trying to treat kids with MLD. The family says Eli might be too old for the treatment, but his sister might be eligible.
The family still is not sure if either child will get a slot in the Italian study.
Students in Oaks Wednesday morning took to the pavement to show their support during a walk to raise money.
Organizers say most of the money raised Wednesday will go to the Vivian family.
Wednesday, May 22 2013 12:49 PM EDT2013-05-22 16:49:38 GMT
Wow! Doylestown really rolled out the welcome mat (and a real red carpet) this morning when Good Day's Jenn Frederick came to town!We chose Doylestown as one of the places to visit in our series called
Wow! Doylestown really rolled out the welcome mat (and a real red carpet) this morning when Good Day's Jenn Frederick came to town!We chose Doylestown as one of the places to visit in our series called
Tuesday, May 21 2013 4:09 PM EDT2013-05-21 20:09:40 GMT
Tuesday was National Waitstaff day across the United States. FOX29's own Jenn Frederick stopped into Bob's in Roxborough Tuesday morning to help serve those who normally serving others.
National Waitstaff Day is celebrated locally at Bob's in Roxborough.
Saturday, May 25 2013 11:48 PM EDT2013-05-26 03:48:06 GMT
A local elected official hits the gas again when FOX 29 Investigates' Jeff Cole tries to ask him a few questions about why a ghost worker was on his staff.
A local elected official hits the gas again when FOX 29 Investigates' Jeff Cole tries to ask him a few questions about why a ghost worker was on his staff.
Saturday, May 25 2013 11:00 AM EDT2013-05-25 15:00:47 GMT
A South New Jersey business owner comes face to face with a suspected robber threatening him with a knife. Thanks to his 7-year-old family pet, the crook ran off.
A South New Jersey business owner comes face to face with a suspected robber threatening him with a knife. Thanks to his 7-year-old family pet, the crook ran off.
Friday, May 24 2013 7:08 PM EDT2013-05-24 23:08:04 GMT
Busy planning your cook-out or trip down the shore this Memorial Day Weekend? Don't forget about the men and women for whom the holiday is observed.
Busy planning your cook-out or trip down the shore this Memorial Day Weekend? Don't forget about the men and women for whom the holiday is observed. FOX 29's Bruce Gordon spent a day with folks preparing a veterans' cemetery for its day in the spotlight.
