Sarah's Fight: Sebelius Writes To Organ Transplant Group - Boston News, Weather, Sports | FOX 25 | MyFoxBoston

Sebelius Writes To Organ Transplant Group As Sarah's Fight Goes On

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PHILADELPHIA -

There were some new developments Friday for a young girl battling a serious illness.

We've been telling you all week long about Sarah Murnaghan. She desperately needs a lung transplant.

U.S. Secretary of Health and Human Services Kathleen Sebelius is now getting involved, asking the Organ Procurement and Transplant Network to review its rules.

Sebelius wrote in part, "We must all be concerned that the nation's organ and transplant system is as fair and equitable as possible."

Sebelius also hopes to get more of the nation to register as organ donors.

Sarah, who suffers from cystic fibrosis, now has the support of senators, actors and more than 200,000 other Americans who signed an Internet petition on her behalf.

But she still doesn't have what she most desperately needs – a new set of lungs.

This case has captured the nation's attention because of its seeming unfairness. Would-be organ recipients like Sarah are put on a waiting list. The patients with the most urgent need get the organs first. Except if you're younger than 12.

The rules say children like 10-year-old Sarah must wait on a pediatric list, where organs are far rarer. Kids are not allowed on the adult list, even if their doctors insist adult organs could save their lives.

Sarah and her parents can only hope the transplantation board does change its policy quickly-- before it's too late.

FOX 29's Claudia Gomez has more details on Sarah's condition in the above video report.

  • Sarah's FightMore>>

  • Sarah Murnaghan Leaves CHOP, Arrives Home!

    Sarah Murnaghan Leaves CHOP, Arrives Home!

    Wednesday, December 18 2013 12:12 PM EST2013-12-18 17:12:02 GMT
    After several months in the hospital and agonizing surgeries, 11-year-old Sarah Murnaghan is finally going home today.
    After several months in the hospital and agonizing surgeries, 11-year-old Sarah Murnaghan is finally home!
  • Sarah Murnaghan Breaths On Her Own

    Sarah Murnaghan Breaths On Her Own

    Tuesday, September 17 2013 8:36 PM EDT2013-09-18 00:36:11 GMT
    In the video, Sarah's aunt asks Sarah, "Are you off your machines?" To which Sarah eventually responds, "I feel fine."
    In the video, Sarah's aunt asks Sarah, "Are you off your machines?" To which Sarah eventually responds, "I feel fine."
  • Sarah Murnaghan Recovering At Home

    Sarah Murnaghan Recovering At Home

    Tuesday, September 17 2013 8:26 PM EDT2013-09-18 00:26:48 GMT
    Sarah's mom says she's looking forward to playing with her friends, singing and playing soccer. She'll basically enjoy the normal life of an 11-year-old.
    Sarah's mom says she's looking forward to playing with her friends, singing and playing soccer. She'll basically enjoy the normal life of an 11-year-old.
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